NBIS provides secure sharing of genomic data
To enable secure and legal sharing of genomic data among researchers in European countries, NBIS has developed the Swedish node of the Federated EGA (FEGA Sweden), which is now in operation.
FEGA Sweden provides access to human genomic data for academic researchers in biomedicine. FEGA is based on data being submitted into a national node while the metadata is entered into a central function, called EGA, where researchers can search for metadata and, upon approval, securely access data. Approved ethical permissions are required to submit and access data. Additionally, the data controller must approve the applicant's project description for encrypted data to be made accessible. NBIS developed the technology in collaboration with other Nordic countries as part of the NeIC Tryggve projects. https://neic.no/heilsa/
A pilot project with the Swedish Childhood Tumour Biobank (Barntumörbanken) has been completed. We now continue to work through the waiting list of about 20 research groups' data and open the doors for new research groups.
