steering

# NBIS Board

**Chairman: Carl-Johan Rubin, Uppsala University**

Leif Andersson, Uppsala University  
Anna Arnqvist, Umeå University  
Laura Elo, University of Turku  
Eivind Hovig, University of Oslo  
Tanja Slotte, Stockholm University  
Therese Sørlie, Oslo University Hospital  
Helena Westerdahl, Lund University  

# NBIS Scientific Advisory Board

Amos Bairoch, Switzerland  
Jaap Heringa, the Netherlands  
Michal Linial, Israel  
Kathryn Lilley, United Kingdom  
Lars Malmström, Switzerland  
Torben Falck Ørntoft, Denmark  

# NBIS Reference Group

**Chairman: Erik Bongcam Rudloff, SLU**

Linn Fagerberg, KTH  
Rebecka Jörnsten, GU  
Carsten Daub, KI  
Maria Lerm, LiU  
Karin Engström, LU  
Fredrik Ronquist, NRM  
Linda Laikre, SU  
Johan Trygg, UmU  
Tove Fall, UU  

Our steering

NBIS is steered by the NBIS Board, assisted by the NBIS Scientific advisory board and the NBIS Reference group. 

documents

# Strategic plans
[NBIS Strategic Plan 2023 – 2028](https://www.nbis.se/wwwadmin/uploads/nbis_strategic_plan_2023_2028_b5547daf67.pdf)  

# Annual reports
[NBIS Annual report 2022](https://www.nbis.se/wwwadmin/uploads/nbis_annual_report_2022_5a5dc226a9.pdf)  


# Forms
[User fee track support order form for academics](https://www.nbis.se/wwwadmin/uploads/nbis_form_academics_ver12_2024_12_20_6eee831994.pdf)  
[User fee track support order form for companies](https://www.nbis.se/wwwadmin/uploads/nbis_form_companies_ver9_cafd7d0156.pdf)  
[Peer review track (WABI) support application form](/uploads/bioinformaticswabi_applicationform_0f9b4577ce.docx)  
[Peer review track (WABI) cryo-EM/ET support application form](/uploads/bioinformaticswabi_applicationform_cryo_EM_1b8322ef04.docx)  
[Partner project agreement form](https://www.nbis.se/wwwadmin/uploads/nbis_form_pp_ver6_f4b3a7a984.pdf)  

# User agreements
[NBIS Support User Agreement](/uploads/nbis_support_useragreement_f2c52d955b.pdf)  

# Data management support information
[Data management support for NBIS projects](https://www.nbis.se/wwwadmin/uploads/Data_Management_support_for_NBIS_projects_046347a69d.pdf)
# Regulatory documents
[Wallenberg Advanced Bioinformatics Infrastructure (231206)](https://www.nbis.se/wwwadmin/uploads/Policy_for_DDLS_WABI_approved_231206_3467e34533.pdf)


# Minutes from Board Meetings
[1 2018](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2018_1_2260b7d6ed.pdf)  
[2 2018](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2018_2_9a30a64eab.pdf)  
[3 2018](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2018_3_9fc9880cb4.pdf)  

[1 2019](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2019_1_2d03198294.pdf)  
[2 2019](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2019_2_85ba9d27f5.pdf)  

[1 2020](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2020_1_fb0b27cb0b.pdf)  
[2 2020](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2020_2_9779b02506.pdf)  
[3 2020](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2020_3_80ba5ec544.pdf)  

[1 2021](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2021_1_22c253cece.pdf)  
[2 2021](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2021_2_396bcec67f.pdf)  

[1 2022](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2022_1_ded08ae78d.pdf)  
[2 2022](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2022_2_9e5810e076.pdf)  

[1 2023](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2023_1_c4b0875d43.pdf)  
[2 2023](https://www.nbis.se/wwwadmin/uploads/nbis_steering_group_2023_2_c8fc977a3c.pdf)  

Official documents

Find our strategic plan, annual report, and minutes from board meetings.

privacy

# Our services that collect personal data

* [The public website](#user-content-the-public-website-nbisse)
* [The project management system](#user-content-the-project-management-system)
* [The learning management system](#user-content-the-learning-management-system-studium)
* [Sensitive data archive](#user-content-sensitive-data-archive)
* [Public newsletters](#user-content-public-newsletters)
* [E-mail](#user-content-e-mail-and-physical-mail)

We also use [third-party service providers](#user-content-third-party-services) that collect and store personal data.

Some services [may use cookies](#user-content-cookie-usage-when-using-nbis-services).

[Your rights concerning this data](#user-content-your-rights)

[How to contact us](#user-content-how-to-contact-us)

<a name="the-public-website-nbisse"></a>
## The public website ([nbis.se](https://nbis.se/))
<dl>
 <dt>What data is collected</dt>
 <dd>If you browse the public website our server logs your browser, operating
system, IP address it communicates with, the date and time of your visit, path
of the pages visited, and the amount of data transferred.</dd>
 <dt>Why we collect the data</dt>
 <dd>Browsing data is used to monitor for suspicious activities (e.g. attempts to
hack the site), to diagnose problems on the site, and to create anonymous
usage statistics. We do not attempt to identify or profile people based on
this data.</dd>
 <dt>Legal basis for processing the data</dt>
 <dd>Processing this data is necessary for our legitimate interest of allowing the
website to remain secure and robust.</dd>
 <dt>Who has access to the data</dt>
 <dd>The personal data is only accessible to staff in NBIS who work on the website.</dd>
 <dt>Data transfer</dt>
 <dd>This data is located on a server in Stockholm, Sweden, and is not transferred
to any other country.</dd>
</dl>

<a name="the-project-management-system"></a>
## The project management system
<dl>
 <dt>What data is collected</dt>
 <dd>If you request support through the support request forms on the public web
site, we will keep records of your name, the name of the Principal
Investigator of your research group, your email address, your affiliation,
and information regarding your research that you submit in your support
request.</dd>
 <dt>Why we collect the data</dt>
 <dd>To be able to interact with you regarding your research support, and to
provide reports to our funders on how our services are used.</dd>
 <dt>Legal basis for processing the data</dt>
 <dd>Processing your name and e-mail as part of a support request is necessary to
fulfill our contractual obligations with you. Processing affiliation and
additional information about you and your research is necessary for our
legitimate interest in providing our funding agencies with reports on the
services we’ve provided. Once collected, keeping these are necessary because
of legal obligations.</dd>
 <dt>Who has access to the data</dt>
 <dd>NBIS staff (persons affiliated with NBIS) can access this data.</dd>
 <dt>Data transfer</dt>
 <dd>This data is located on a server in Stockholm, Sweden, and is not transferred
to any other country.</dd>
</dl>

<a name="the-learning-management-system-studium"></a>
## The learning management system Studium
<dl>
 <dt>What data is collected</dt>
 <dd>If you take part in a course offered by us through our learning management
system, details such as your name and e-mail address will be collected.
Likewise, any details related to your progress will be processed.</dd>
 <dt>Why we collect the data</dt>
 <dd>Processing this data is necessary to be able to offer our training services.</dd>
 <dt>Legal basis for processing the data</dt>
 <dd>This processing is necessary to fulfill our contractual obligations with you.
Once collected, processing may additionally be necessary to comply with our
legal obligations.</dd>
 <dt>Who has access to the data</dt>
 <dd>Course management, Studium administrators at Uppsala University as well as
Instructure and any of their sub processors may have access to this data.</dd>
 <dt>Data transfer</dt>
 <dd>This data may possibly be transferred to third countries where it may be
legally processed. The basis for this transfer are the standard contractual
clauses in the data processing addendum (see <a href="https://www.instructure.com/policies/data-processing">the Instructure GDPR page</a>)
 </dd>
</dl>

<a name="sensitive-data-archive"></a>
## Sensitive data archive
<dl>
 <dt>What data is collected</dt>
 <dd>If you submit data to us we will store your email and Elixir ID, information
about all the files submitted through that account, such as time, date and
the originating IP address. We also keep track of who requests and gets
access to data and when and to where it is transferred.</dd>
 <dt>Why we collect the data</dt>
 <dd>Processing this data is necessary to be able to offer a secure data archive
and fulfill contractual obligations to data depositors.</dd>
 <dt>Legal basis for processing the data</dt>
 <dd>Processing this data is necessary for our legitimate interest of operating the
secure archive and to ensure it remains secure and robust.</dd>
 <dt>Who has access to the data</dt>
 <dd>NBIS Staff that is operating the services. Submissions and requests may be
synced with third parties in case the submitter chooses to engage them.</dd>
 <dt>Data transfer</dt>
 <dd>This data is located on servers in Sweden. The data will only be transferred
to third parties in case the controller of a dataset that is deposited wants
it to be discoverable in external databases, such as the <a href="https://ega-archive.org/">European
Genome-Phenome Archive</a>.</dd>
</dl>

<a name="third-party-services"></a>
# Third-party services

For login to some of our systems we use a federated login service called Elixir AAI. It is based within the EU in the Czech Republic, see [here](https://perun.elixir-czech.cz/docs/ELIXIRAAIPrivacyPolicy-v1.pdf) for their privacy policy.

<a name="typeform-form-submission-service"></a>
## Typeform (form submission service)
<dl>
 <dt>What data is collected</dt>
 <dd>Your browser, IP address, type of device and date and time of your visit can
be collected by Typeform. Any respondent data in the corresponding form.</dd>
 <dt>Why data is collected</dt>
 <dd>The submitted data is collected for the purpose specified for each consented
form, such as registration or feedback.</dd>
 <dt>Legal basis for processing the data</dt>
 <dd>When you submit personal data in a form, you consent to our processing the
corresponding data. Once submitted, we may optionally store and use that
information to comply with our legal obligations.</dd>
 <dt>Who has access to the data</dt>
 <dd>Typeform and any of its sub processors may have access to this data as well
as NBIS staff.</dd>
 <dt>Data transfer</dt>
 <dd>Data can possibly be transferred to any third country where it may legally be
processed. The legal basis for these transfers are the standard contractual
clauses offered by Typeform (see <a href="https://admin.typeform.com/to/dwk6gt/">here</a>).</dd>
</dl>

<a name="cookie-usage-when-using-nbis-services"></a>
# Cookie usage when using NBIS services

NBIS services that require login will use a session cookie to keep track of your logged in state.

<a name="public-newsletters"></a>
# Public newsletters

NBIS offers various mailing lists it’s possible to subscribe to.

<dl>
 <dt>What data is collected</dt>
 <dd>Your name, your e-mail address and various technical details about mail
delivery (e.g. failed delivery attempts). Additionally, if you send mails to
these mailing lists, additional details such as the mail contents and
delivery details will be collected and stored.</dd>
 <dt>Why we collect the data</dt>
 <dd>To be able to interact with you and offer a forum for user to user contact
through our mailing lists. If you send mails we keep required information due
to legal reasons (see e-mail).</dd>
 <dt>Legal basis for processing the data</dt>
 <dd>When subscribing to these e-mail lists, you consent to our processing of your
name and e-mail in order to support us delivering mails to you. If you send
e-mail to these list, we collect and store information about that to comply
with our legal obligations.</dd>
 <dt>Who has access to the data</dt>
 <dd>NBIS staff (persons affiliated with NBIS) can access this data. Sending
e-mails will lead to those being sent to all subscribers. Certain mailing
lists may have public archives and sending e-mails to such lists will lead to
those mails being publicly available.</dd>
 <dt>Data transfer</dt>
 <dd>This data is located on a server in Stockholm, Sweden, and is not transferred
to any other country with the exception of any information connected to sent
e-mails.</dd>
</dl>

<a name="other-services"></a>
## Other services

Different projects may have different public newsletters that are possible to subscribe to. Please see the respective project or newsletter for information on what data is processed and how it is used.

<a name="e-mail-and-physical-mail"></a>
# E-mail (and physical mail)

NBIS is legally part of Uppsala universitet which is a government entity. One consequence of this is that Offentlighets- och sekretesslag (SFS 2009:400) and Tryckfrihetsförordning (SFS 1949:105) govern what happens with documents created at or sent to NBIS.

If you send mail to NBIS staff, we will collect and store it to comply with our legal obligations. Similarly we will store any mail sent to you from NBIS staff. Any such data is eligible to be disclosed (excluding details with legal grounds for secrecy).

<a name="data-retention"></a>
# Data retention

Any data collected will be kept as long as it’s necessary for the stated purpose they are collected for.

<a name="your-rights"></a>
# Your rights

You have the right to:

1. Not be subject to decisions based solely on an automated processing of data (i.e. without human intervention) without being able to having your views taken into consideration.

1. Request at reasonable intervals and without excessive delay or expense, information about the personal data processed about you and the data processed.

1. Request information to understand data processing activities when the results of these activities are applied to you (e.g. why is information collected, how do you object etc.).

1. Request rectification of your personal data. You are also entitled to request limitation of processing your personal until rectified.

1. Object to the processing of your personal data.

1. Request the erasure of your personal data.

It must be clarified that we are only able to take the requested action regarding rights 5 and 6 whenever the processing of your personal data is not necessary to:

* Comply with a legal obligation.
* Perform a task carried out in the public interest.
* Carry out a contractual obligation to you.
* Perform processing based on our legitimate interest where our interest of continued processing outweighs your interest in the desired action.

<a name="general-concerning-your-rights"></a>
## General concerning your rights

For any request, you have the right to a response as soon as possible and your request shall be handled at the latest a month after being submitted.

You are entitled to exercise your rights without charge. For repeated requests we may charge an administrative fee, but it must not be so high that it deters valid requests. As a last resort may also turn down abusive requests.

Since our host Uppsala University is a government entity you are also entitled to have your request tried in administrative court.

If you want to exercise these rights then please contact the Data Protection Officer (see [How to contact us](#user-content-how-to-contact-us)).

<a name="how-to-contact-us"></a>
# How to contact us

Legally NBIS is part of the Uppsala University and therefore uses Uppsala University’s legal personality.

Jacob Håkansson, Data Protection Officer at Uppsala University Email: dataskyddsombud@uu.se

Privacy Policy

logo

[Orange with text](https://www.nbis.se/wwwadmin/uploads/nbislogo_orange_txt_3cb0778d90.svg)  
[Orange without text](https://www.nbis.se/wwwadmin/uploads/nbislogo_orange_ac092b7014.svg)  
[Green with text](https://www.nbis.se/wwwadmin/uploads/nbislogo_green_txt_f34bc9d3c3.svg)  
[Green without text](https://www.nbis.se/wwwadmin/uploads/nbislogo_green_10ae7c3149.svg)  
[Blue with text](https://www.nbis.se/wwwadmin/uploads/nbislogo_blue_txt_f670511fa5.svg)  

Logo for download

general-processing-agreements

General agreements have been established between NBIS/Uppsala
University and some Swedish universities, for three different general
cases:

1. NBIS/Uppsala University acts as Processor on behalf of another
 university for performing bioinformatics analysis
2. Another university acts as Sub-processor to NBIS/Uppsala University
 for performing bioinformatics analysis. This is for cases where
 NBIS staff is employed by a university other than Uppsala
 University.
3. NBIS/Uppsala University acts as Processor on behalf of another
 university for long-term storage of personal data in the Swedish
 EGA node.

## Established agreements

This table lists the registration numbers ("diarienummer") at Uppsala
University for the established agreements, including links to the
agreements, for the three different cases listed above.

<table>
 <thead>
 <tr>
 <th>University</th>
 <th>Case 1</th>
 <th>Case 2</th>
 <th>Case 3</th>
 </tr>
 <tr>
 <th> </th>
 <th>Processor</th>
 <th>Sub-processor</th>
 <th>EGA-SE</th>
 </tr>
 </thead>
 <tbody>
 <tr>
 <td><a href="https://www.chalmers.se/">Chalmers tekniska högskola</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_178_Chalmers_PUB_14974c8b61.pdf">ICM 2019/178</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_179_Chalmers_PUUB_3f0d964287.pdf">ICM 2019/179</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_180_Chalmers_PUB_2d3c94ed7a.pdf">ICM 2019/180</a></td>
 </tr>
 <tr>
 <td><a href="https://www.gu.se/">Göteborgs universitet</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_181_GU_PUB_fb26d7f243.pdf">ICM 2019/181</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_182_GU_PUUB_d6676bc6d5.pdf">ICM 2019/182</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_183_GU_PUB_9940b3f671.pdf">ICM 2019/183</a></td>
 </tr>
 <tr>
 <td><a href="https://ki.se/">Karolinska institutet</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_184_KI_PUB_ff9714bf9b.pdf">ICM 2019/184</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_185_KI_PUUB_ca40835f92.pdf">ICM 2019/185</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_186_KI_PUB_e025c89560.pdf">ICM 2019/186</a></td>
 </tr>
 <tr>
 <td><a href="https://www.kth.se/">Kungliga tekniska högskolan</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_187_KTH_PUB_f4995dfa1e.pdf">ICM 2019/187</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_188_KTH_PUUB_f99f5e7351.pdf">ICM 2019/188</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_189_KTH_PUB_635ff99d5a.pdf">ICM 2019/189</a></td>
 </tr>
 <tr>
 <td><a href="https://www.liu.se/">Linköpings Universitet</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_190_Li_U_PUB_f8e20662d0.pdf">ICM 2019/190</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_191_Li_U_PUUB_2e3c3d3b8a.pdf">ICM 2019/191</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_192_Li_U_PUB_5ea8c147d4.pdf">ICM 2019/192</a></td>
 </tr>
 <tr>
 <td><a href="https://www.lu.se/">Lunds Universitet</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_193_LU_PUB_aea6f6ed79.pdf">ICM 2019/193</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_194_LU_PUUB_028a8da640.pdf">ICM 2019/194</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_195_LU_PUB_b4f0d1ae31.pdf">ICM 2019/195</a></td>
 </tr>
 <tr>
 <td><a href="https://www.nrm.se/">Naturhistoriska riksmuseet</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_196_NRM_PUB_111fea611d.pdf">ICM 2019/196</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_197_NRM_PUUB_fd4e74ea5a.pdf">ICM 2019/197</a></td>
 <td> </td>
 </tr>
 <tr>
 <td><a href="https://www.su.se/">Stockholms universitet</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_202_SU_PUB_400d4df4d4.pdf">ICM 2019/202</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_203_SU_PUUB_3e19196356.pdf">ICM 2019/203</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_204_SU_PUB_0eaf71a5c6.pdf">ICM 2019/204</a></td>
 </tr>
 <tr>
 <td><a href="https://www.slu.se/">Sveriges lantbruksuniversitet</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_199_SLU_PUB_b9c24e6c03.pdf">ICM 2019/199</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_200_SLU_PUUB_13c465b768.pdf">ICM 2019/200</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_201_SLU_PUB_fbd6ec1f24.pdf">ICM 2019/201</a></td>
 </tr>
 <tr>
 <td><a href="https://www.umu.se/">Umeå universitet</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_205_Um_U_PUB_8302ff14b2.pdf">ICM 2019/205</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_206_Um_U_PUUB_65413d2a7c.pdf">ICM 2019/206</a></td>
 <td><a href="/wwwadmin/uploads/Diarie_NBIS_ICM_2019_207_Um_U_PUB_ab9b084b58.pdf">ICM 2019/207</a></td>
 </tr>
 </tbody>
</table>
 
&nbsp;

General processing agreements

Information about general processing agreements that have been established between NBIS/Uppsala University and other Swedish universities.

Steering and documents

Our steering

Official documents

Privacy Policy

Logo for download

General processing agreements